MDA

Press Release:

The International Association of Fire Fighters (IAFF) has collected critical funds in the community since 1954 – one dollar at a time – as part of the Fill the Boot program for the Muscular Dystrophy Association (MDA). 

The Professional Fire Fighters Association Local 896 will be continuing this long-standing tradition as its members kick off the annual program raising funds to support MDA’s vision to accelerate research, advance care, and advocate for the support of MDA families.

Dedicated fire fighters from Professional Fire Fighters Association Local 896 will hit the streets with boots in hand asking pedestrians, motorists, customers, and other passersby to donate to the MDA on May 31 from 7:30 a.m. - 2 p.m., at Main and Court Street, and Ellicott and Court Street in the City of Batavia.

The partnership between MDA and IAFF began in 1954 when the IAFF signed a proclamation designating MDA its charity of choice and vowing to continue raising awareness and funds until cures are found. To date, the nearly seven-decade partnership has raised more than $679 million with involvement from over 300,000 fire fighters nationwide. 

These funds have led in part to over a dozen FDA-approved drugs in as many years for those with neuromuscular disease. Those treatments were created from MDA’s vision to open a new field of medicine and push the boundaries of the medical frontier we call genetic medicine.

“What the IAFF has done for MDA over the past 68 years is unprecedented,” said Donald S. Wood, Ph.D., President and CEO of MDA. “With the support from our partners at the IAFF, MDA is doing the impossible in accelerating research, advancing care, and advocating for people living with neuromuscular disease. We have a mission to empower the people we serve to life longer, more independent lives and we will fulfill this mission together, with the IAFF.”

Press Release:

The International Association of Fire Fighters (IAFF) has collected critical funds in the community since 1954 – one dollar at a time – as part of the Fill the Boot program for the Muscular Dystrophy Association (MDA). The Professional Fire Fighters Association Local 896 will be continuing this long-standing tradition as its members kick off the annual program raising funds to support MDA’s vision to accelerate research, advance care, and advocate for the support of MDA families.

Dedicated firefighters from Professional Fire Fighters Association Local 896 will hit the streets with boots in hand asking pedestrians, motorists, customers, and other passersby to donate to MDA on June 2 from 7 a.m. to 2 p.m., at Main and Court streets, and Ellicott and Court streets in the City of Batavia.

The partnership between MDA and IAFF began in 1954 when the IAFF signed a proclamation designating MDA its charity of choice and vowing to continue raising awareness and funds until cures are found. To date, the nearly seven-decade partnership has raised more than $679 million with involvement from over 300,000 fire fighters nationwide. These funds have led in part to over a dozen FDA-approved drugs in as many years for those with neuromuscular disease. Those treatments were created from MDA’s vision to open a new field of medicine and push the boundaries of the medical frontier we call genetic medicine.

“What the IAFF has done for MDA over the past 68 years is unprecedented,” said Donald S. Wood, Ph.D., President and CEO of MDA. “With the support from our partners at the IAFF, MDA is doing the impossible in accelerating research, advancing care, and advocating for people living with neuromuscular disease. We have a mission to empower the people we serve to life longer, more independent lives and we will fulfill this mission together, with the IAFF.”

About the IAFF

The International Association of Fire Fighters represents more than 326,000 professional fire fighters and paramedics who protect more than 85% of the nation's population. More than 3,500 affiliates and their members protect communities in every state in the United States and in Canada. 

About Muscular Dystrophy Association

Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives. To learn more, visit mda.org.

Press Release

City of Batavia Firefighters IAFF Local 896 is happy to announce the
return of our Fill the Boot campaign for the Muscular Dystrophy Association.

After a two-year break due to COVID we are bringing back our annual boot drive this year. On Friday, June 17, 2022, from 8:30 a.m. through 1:30 p.m. our Local 896 members will once again be out in the areas of Court Street and Main Street as well as Court Street and Ellicott Street to collect donations for the MDA.

The second part of our Fill the Boot campaign is our traveling boots. IAFF Local 896 has partnered with businesses throughout the City of Batavia to host a collection boot so that donations can be made throughout the year. Donations collected during our Fill the Boot campaign will support researching neuromuscular diseases such as ALS, muscular dystrophies, and other diseases.

Donations will also provide support for families affected by these diseases and opportunities for children affected to go to camps with other children.

Local 896 would like to thank everyone for the donations already received and for all future donations. Also a thank you to the local businesses such as Dunkin’ Donuts, Tops Friendly Markets, NAPA, Sherwin-Williams, and Tonawanda Valley Federal Credit Union who have already adopted a traveling boot for their location.

From city fire and an MDA press release:

The Batavia City Firefighters IAFF Local 896 is proud to announce that the community raised $9,104.17 for the MDA, according to Firefighter Chris Morasco.

"That is the total for today’s boot drive combined with the 'traveling boots' that are always on display around town," he said.

The annual fundraising campaign helps kids and adults with muscular dystrophy, ALS and related muscle-debilitating diseases to live longer and grow stronger.

Continuing a more than 60-year tradition, dedicated fire fighters from Batavia City Firefighters IAFF Local 896 hit the streets or storefronts with boots in hand asking pedestrians, motorists, customers and other passersby to make a donation to MDA today at the intersections of Main Street (Route 5) and Court Street, and at Ellicott Street (Route 63) and Court Street.

"The dedication of these firefighters to MDA’s mission is unwavering, spending countless hours both with Fill the Boot and MDA Summer Camp to care for the kids and adults in the Buffalo and Greater Rochester Area," said MDA fundraising coordinator Alicia Sinicropi.

Funds raised through Buffalo and Greater Rochester Fill the Boot events in 2018 empower families who inspire everyday Americans to help kids and adults with Muscular dystrophy and related muscle-debilitating diseases live longer and grow stronger, displaying how we all can truly live unlimited no matter what limits we may face.

Contributions also help fund groundbreaking research and life-enhancing programs such as state-of-the-art support groups and Care Centers, including the MDA Care Center at Dent Neurologic Institute Amherst and Orchard Park, Buffalo General Medical Center and Strong Memorial Hospital in Rochester.

They also help send more than 60 local kids to “the best week of the year” at MDA summer camp at Rotary Sunshine Campus – all at no cost to their families.

MDA and IAFF Partnership

As MDA’s largest national partner, the IAFF fuels MDA's mission to find research breakthroughs across diseases; care for kids and adults from day one; and provide families with services and support.

IAFF support for MDA began in 1954 when the organization committed by proclamation to support MDA until a cure is found, and the organization's unwavering commitment to MDA has remained strong to this day. The IAFF raised $100,000 for MDA in 1955, and $1 million in 1970, and fire fighters continue to raise the bar in their fundraising efforts. In 2017, more than100,000 fire fighters participated in Fill the Boot events across the country and raised $24 million. To date the IAFF has raised $630 million for MDA.

About the IAFF
The International Association of Fire Fighters represents more than 300,000 professional fire fighters and paramedics who protect 85 percent of the nation’s population. More than 3,200 affiliates and their members protect communities in every state in the United States and in Canada.

About MDA
MDA is leading the fight to free individuals — and the families who love them — from the harm of muscular dystrophy, ALS and related muscle-debilitating diseases that take away physical strength, independence and life. We use our collective strength to help kids and adults live longer and grow stronger by finding research breakthroughs across diseases; caring for individuals from day one; and empowering families with services and support in hometowns across America.

Press release:

Members of the Batavia City Firefighters from IAFF Local 896 will fan out across the streets of Downtown Batavia with boots in hand on Friday.

This year's Fill the Boot drive for MDA is June 15th and it's organized by firefighter Chris Morasco.

“In 2017, we set out to break the $10,000 mark," he said. "Our members, with the help of our generous community were successful and able to raise $10,651 for the MDA! Look for us Friday!”

From 8 a.m. to 2 p.m., city firefighters will be at the intersection of Main Street (Route 5) and Court Street AND at Ellicott Street (Route 63) and Court Street.

Photo: File Photo

You have until 1:30 p.m. today to make a difference in the annual Fill the Boot drive to raise funds to fight muscular dystrophy.

Batavia City firefighters from IAFF Local 896 are ready to take your money at Main Street and Court Street and at Ellicott Street and Court Street.

In 2015, they raised $7,523 for the MDA. This year, they hope to top the $10,000 mark.

Members of the Batavia City Firefighters from IAFF Local 896 will fan out across the streets with boots in hand for this year’s drive on Friday, June 3rd.

Batavia’s Fill the Boot drive is organized by firefighter Chris Morasco. 

“In 2015, our members with the generous help of the community were able to raise $7,523 for the MDA! We are going to try our best to top the $10,000 mark for this great cause," Morasco said.

The event is from 8 a.m. to 1:30 p.m. on Main Street and Court Street and at Ellicott Street and Court Street.

Pictured with city firefighters are Patti Arroyo and her daughter Zoey.

They are a local family that has been touched by the MDA directly. They met with firefighters to explain how the MDA has helped them. 

"It was a great opportunity to put a face to the cause and see that our efforts are truly making a difference and changing lives," Morasco said.

Press release:

Members of the City of Batavia Fire Department IAFF Local 896 pair up with the Muscular Dystrophy Association every June to participate in the annual Fill the Boot fundraising campaign to benefit children and adults with muscle disease throughout the Greater Rochester and Buffalo areas. Members volunteer their time to fan out on city streets with boots in hand to raise money from local traffic.

To help the MDA throughout the year, members have created several “traveling boot” displays. With approval from local businesses, these displays have been placed in various business locations throughout the city. The “traveling boot” will stay in one location for a short period of time, before moving to a new location.  Customers and patrons can place loose change and dollars in the boot and help raise money for the MDA. The first boots have been placed in Dunkin’ Donuts and Southside Deli.

Batavia’s Fill the Boot drive is organized by firefighters Chris Morasco and Mark Sacheli.

“The communities’ generosity as well as great participation from our members has continued to make this program a success. The 'traveling boots' are a way that we can give back to the MDA more than just one day a year. It is a great cause, and we look forward to a successful fundraising campaign for the 2016 year.”

City of Batavia firefighters will host a community fundraiser tomorrow at Bob Evans restaurant to benefit the Muscular Dystrophy Association.

It will be held from 10 a.m. to 8 p.m. at the restaurant, located at 196 Oak St. in Batavia. City firefighters will serve as celebrity servers throughout the day.

When you present a special flier at check out, 15 percent of the sale will be donated to MDA. The flier must be presented at check out, and is valid for both dine-in or carry-out orders. Click here for the flier (pdf).

Members of the Batavia City Fire Department are out on Main, Ellicott and Court streets today with boots collecting donations for "Jerry's Kids."

The annual "Fill the Boot" fundraiser is sponsored by the International Association of Firefighters and benefits the Muscular Dystrophy Association.

City firefighters will be on scene until 5 p.m.

If you can't make it by or prefer to make a donation with a credit card, click here.

At least for Friday, it's time for the community to come together and forget any disagreements over the soon-to-be-discontinued Batavia ambulance service, says Greg Ireland.

Friday is the 15th-annual "Fill the Boot" drive for MDA, a fundraiser sponsored by City of Batavia Firefighters IAFF Local 896.

Money collected during the fundraiser benefits children who are diagnosed with neuromuscular diseases. Donations cover the costs of everything from wheelchairs and braces to physical therapy, as well as summer camps.

"This year is as important as any to these kids," Ireland said in an e-mail. "There is no reason why our Union's disagreements with City Hall should get in the way of helping them. Sure there is a lot of tension around the Fire House right now with the impending layoffs, but that doesn't change the fact the the MDA needs our support."

Ireland said union members held a meeting recently and united around the need to ensure "Fill the Boot" came together again this year.

Off-duty members of Local 896, including firefighters and medics who will be out of work on Sept. 1, will be at the fundraiser at 1 Court St. on Friday.

Last year's "Fill the Boot" campaign set a record with $5,000 in donations.

"To me, the MDA is very important," Ireland wrote. "These kids have been sentenced to a life of pain and suffering for no apparent reason. If we can raise money to make their life easier in any way, it's worth it. For example, The MDA of Rochester has several day camps for the kids. I've visited there before, and to see the kids being kids, being able to do the things that normal children can do, it is really great. It gives them a day or two to just leave their illness behind and enjoy being a kid! It is quite touching to see."